menstruation > living-with-heavy-menstrual-bleeding

are pregnant or have just had a baby

if you have had a recent blood transfusion

if you exercised just before the test

if you are on the oral contraceptive pill

if you are taking hormone replacement therapy (HRT)

because results may vary during the menstrual cycle

in a newborn baby

These factors cause the body to release hormones which can temporarily increase the levels of VWF in the blood, leading to what are called ‘false normal’ laboratory results. Test results can also differ in members of the same family, even though they have all inherited the same type of VWD.

Once a diagnosis is made, the haematologist or haemophilia treatment centre can develop a treatment plan which will help to manage bleeding symptoms. Appropriate treatment can also be given before surgery or following a trauma to help to minimize bleeding problems.

Many women find that although their condition is diagnosed as “mild” they still have significant bleeding symptoms, and mild bleeding disorders can still be very disruptive to relationships, employment and lifestyle. Some women may find that they have very few symptoms, but it is important to get the right information and support.

It is recommended to carry a green card, which is available from the haemophilia centre, and gives details of the condition and any treatment. Medical ID, such as a Medic-Alert tag or SOS Talisman is also advisable as they draw immediate attention to medical conditions in an emergency.

Treatment

Women diagnosed with VWD should receive on-going care from a haemophilia centre. There are two types of centre for the treatment of bleeding disorders: comprehensive care centres and haemophilia centres. For further details of the centres, or to find the one nearest to you, please see our list of haemophilia centres

Effective care for women with VWD is generally based on collaboration between specialists in haemophilia, obstetrics, gynaecology and other areas. Various treatment options are available depending on the type of VWD, and it is important to discuss the best treatment approach with the doctor and to ask as many questions as necessary about the options, and the risks and benefits of each treatment suggested.

Minor bleeding episodes may not necessarily require treatment to control the bleeding, for example:

Bleeding from minor cuts and scratches can usually be controlled by applying pressure
Nosebleeds will usually stop by tilting the head forward and pinching the nostrils together for 10-15 minutes
Bruises will usually fade away

Women with mild VWD may find that they only require treatment before surgery or a tooth extraction, or that the contraceptive pill to control menstrual bleeding is all that is needed. Other women may find that they need treatment on demand, for example, if they have a heavy nosebleed. However, women with severe bleeding symptoms may need to have regular treatment.

(published with permission in writing from:http://www.womenbleedtoo.org.uk)